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When “Just Call and Ask” Isn’t Simple At All

I had to refill a prescription this week. One prescription. Here’s what that took: a call to my mail-order pharmacy, who told me they’d outsourced the fill to another pharmacy. An online chat that couldn’t help and told me to call. A phone call that got transferred four or five times. A dropped call thatโ€ฆ

The Quiet Threads That Bind: Siblings and Special Needs

I don’t have a sibling with a disability, so I want to be upfront about what this piece actually is: not an account of what it feels like from the inside, but what’s visible from the outside, watching these families closely. The waiting rooms. The small routines that repeat so often they stop looking likeโ€ฆ

Navigating Project Stalls: Insights for Sibs

I have a confession. Somewhere around page 100 of the sib book I’ve been writing, I stopped. (Not the book proposal that was just accepted.) This blog, in a book. I hired an editor. She did a once-over, and I did not finish the corrections. Not because I ran out of things to say. Notโ€ฆ


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  1. If you’re on SSI or SSDI you get free healthcare BUT often you have to wait even longer to get authorizations in some cases. Even though social security is a federal agency the state doles out the medical insurance. In California it was called Medical-Cal.
    For those that believe the agencies are consistent.. good luck.

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